November 2020 FOXG1 Research Foundation Research Update: Two Biotech companies are investing in FOXG1 syndrome for gene therapy and ASO therapy. FOXG1 Research is moving into screening drugs and testing potential therapies with a newly assembled consortium of esteemed scientists.
Taysha Gene Therapies Takes on FOXG1 Syndrome!
Riepilogo del FOXG1 Science Symposium 2020
The Italian translation of the summary of the FOXG1 Science Symposium 2020. Riepilogo del FOXG1 Science Symposium 2020
Eine Zusammenfassung des FOXG1 Wissenschafts-Symposiums 2020
FOXG1 2020 科学研讨会的回顾
Een samenvatting van het FOXG1 Science Symposium 2020
Uma recapitulação do “FOXG1 Science Symposium 2020”
El Simposio de ciencia FOXG1 2020
Un récapitulatif du Symposium scientifique FOXG1 2020
Once Upon A Gene Podcast Interview with Nasha Fitter on the new platform using medial records to advance research for rare disorders
In the latest episode of the Once Upon a Gene Podcast hosted by Effie Parks, we hear from the FOXG1 Research Foudnation CEO, Nasha Fitter on the revolutionary platform she’s spearheading at Ciitizen to digitally collect patients medical records and use machine learning to advance research and the road to approved therapies.
The FOXG1 Science Symposium 2020 - Recap
The virtual FOXG1 Science Symposium 2020 was a tremendous success in demonstrating the work towards advancing science to find a cure for FOXG1 syndrome. Scientists from Tokyo, the UK, Italy, California and more gathered with Biopharma industry executives and FOXG1 caregivers to share data and engage in collaborative discussions towards disease-modifying therapies. Read the recap here and watch the panel discussions.
AAC for FOXG1 Syndrome
Communication, as well as other struggles stemming from the condition, can feel like a daunting and almost impossible task for families facing FOXG1. Here, the CoughDrop app – along with other communication products – can be found and used as available resources to improve communication.