Nov
15
to Nov 17

2024 FOXG1 Syndrome Parents & Caregivers Conferenc

  • Google Calendar ICS

The 2024 FOXG1 Syndrome Parents Conference will be held November November 15th-17th, 2024 at the B Ocean Resort in Fort Lauderdale.

In this retreat-setting, FOXG1 parents will connect with other FOXG1 parents, scientists, and FOXG1 clinicians to learn all about the spectrum of FOXG1 syndrome, the FOXG1 research strategy towards a cure, and we will discuss parenting children with complex needs.

The theme of conference is Connect - Learn - Inspire.

We hope you will leave with newfound hope for the future. We can’t wait to bring our community together to support and uplift one another.

For any questions please contact [email protected]

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Mihali Benefit Concert for FOXG1 Research in Long Island, New York!
May
30
7:30 PM19:30

Mihali Benefit Concert for FOXG1 Research in Long Island, New York!

Music artist, Mihali is making a stop on his National tour to help raise money to cure FOXG1 syndrome, an Autism-related rare disease that impacts children all round the world. On May 30th, 2024 at the Landmark theater in Port Washington NY, music lovers and supporters of the FOXG1 Research Foundation will come together to enjoy the uplifting reggae music of Mihali while helping to drive an exciting gene therapy program for children with FOXG1 syndrome. The FOXG1 Research Foundation was co-founded in 2017 by Port Washington local and mom to Josie, Nicole Zeitzer Johnson, the author of the children’s book, Joyfully Josie that teaches all children about disabilities inclusion.

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FOXG1 CHARITY GOLF TOURNAMENT & WINE TASTING - NAPA VALLEY, CALIFORNIA
Mar
25
12:00 PM12:00
Fundraiser Event

FOXG1 CHARITY GOLF TOURNAMENT & WINE TASTING - NAPA VALLEY, CALIFORNIA

  • Silverado Country Club & resort (map)
  • Google Calendar ICS

Join us for the first flagship FOXG1 Charity Golf Tournament on Friday, March 25, 2022 at the Silverado Resort & Spa where you and your team can tee off on this premier PGA golf course for a VIP golfing experience. We will be raising money to find a cure for FOXG1 syndrome while enjoying a beautiful day on the course in Napa Valley, California!

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Oct
1
8:00 AM08:00
Fundraiser Event

FOXG1 Charity Golf Tournament - RESCHEDULED FOR SPRING 2022

The FOXG1 Research Foundation is thrilled to be hosting our first-ever charity golf tournament this Spring 2022 at Silverado Resort and Spa - home to the Safeway Open with two PGA championship golf courses owned by the famed Johnny Miller.

Join us to play golf on this beautiful, world-renowned course for not only an amazingly fun day but also to help raise money along the path to a cure for every child in the world with FOXG1 Syndrome.

We are dedicated to finding a cure and we will get there much faster together, one hole at a time! We look forward to hosting you, your friends, and colleagues for a spectacular day of golf in the beautiful Napa Valley.

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Oct
29
2:00 PM14:00
webinar

FOXG1 Parents Connect: Live Research Update

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We have some new exciting developments to share with all FOXG1 parents and caregivers. Join us on October 29th for a live FOXG1 Research Update. Hosted by our CEO and Head of Research Nasha Fitter.

We will add the Zoom link here on October 29th just before the event.

If you’re on facebook, be sure to follow FOXG1 Research and join the FOXG1 Parents Connect group.

And sign up for our newsletter!

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FOXG1 Science Symposium 2020
Aug
17
to Aug 18
Conference

FOXG1 Science Symposium 2020

On August 17th and 18th the FOXG1 Research Foundation will host an online virtual conference, bringing together an outstanding community of researchers, clinicians, Biopharma executives, and caregivers to share work and to engage in collaborative and conceptual discussions on the pathway toward potential disease-modifying therapies for FOXG1 syndrome.

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