We Remember

When we lose a member of our FOXG1 family, our worldwide community grieves.

To our FOXG1 children who have passed, we will always remember and honor you.

We hold you deep in our hearts. You will always inspire us to continue our relentless work to change the face of FOXG1 syndrome and find a cure. We only wish we could have done it sooner.

  • A young boy with FOXG1 syndrome wearing glasses sitting in a wheelchair, smiling, in an indoor setting.

    Autrey Brian Thacker

    December 31, 2001 - October 20, 2025

    North Carolina, USA

  • Young girl with a pink bow in her hair sitting in a green and black wheelchair, smiling with her legs raised, in front of a mural of white angel wings on a light blue background.

    Louisiana Marie

    February 8, 2016 - September 24, 2025

    West Jefferson, NC

  • A young woman with FOXG1 syndrome with short brown hair smiling, sitting in a wheelchair.

    Amy Zgorskis

    October 7, 1987 - July 23, 2025

    Maryland, USA

  • A young boy with dark, curly hair and big brown eyes smiling showing missing front teeth, lying close to an adult, possibly a parent, with part of their face visible, in an indoor setting.

    Benjamin Morata Gomes

    September 8, 2021 - June 3, 2025

    Brazil

  • A young boy with blond hair in a striped shirt sitting in a wheelchair, smiling and holding hands with an adult who is offering him a piece of bread or pastry.

    Jacob Bennett Brock

    August 25, 2007 - February 1, 2025

    Ohio, USA

  • Close-up of a lit memorial candle with a glowing flame against a black background.

    20 year old boy

    Belgium

  • A smiling young girl with curly hair and a red bow, sitting in a pink and black stroller, outdoors among pumpkins and hay.

    Lilliana Lanae Tarver

    November 14, 2018 - December 24, 2024

    Texas, USA

  • Close-up of a lit candle with a glowing flame in the dark.

    Canada

  • A young girl lying down and smiling, with long pink hair, on a blue background with some decorative strings or beads.

    Malachy Spriggs

    July 6, 2012 - July 30, 2024

    UK

  • A young girl with curly hair lying on a couch, smiling at the camera, wearing a shirt with a flower pattern.

    Brianna Mae Loftin

    August 23, 2007 - October 13, 2024

    Texas, USA

  • A young boy with short brown hair lying on a red surface, smiling with missing front teeth, and a black and brown dog lying close to him.

    Curtis James Gilkes

    July 16, 2004 - Nov 3, 2023

    Australia

  • A young girl with short dark hair, smiling widely, wearing a tie-dye shirt and a bow headband, standing in front of a wooden background.

    Valeria Ponce Orendain

    April 3, 2017 - July 3, 2023

    Mexico

  • A young girl with short hair smiling, sitting in a stroller outdoors.

    Moseley Collins

    September 17, 2012 - June 17, 2023

    Florida, USA

  • Smile of a young boy with short hair, missing front teeth, and a green background.

    Noah Cox-Lee

    December 19, 2017 - May 17, 2023

    UK

  • A young person lying on a bed, looking at the camera with a slight smile.

    Jack Gilvarry

    December 10, 2009 - May 10, 2023

    UK

  • A close-up black and white photo of a smiling young woman with freckles, holding her hand near her face, with a blurred chair in the background.

    Olivia Colbourne

    2002 - March 19, 2024

    Victoria, Australia

  • Woman with curly hair and sunglasses smiling outdoors

    Prescilia Gueux

    March 22, 1995 - February 23, 2023

    France

  • Close-up of a single lit candle with a glowing flame against a dark background.

    Robert

    2010 - January 3, 2023

    UK

  • A young girl smiling, sitting in a car seat, with braided hair and wearing a blue patterned shirt.

    Iris Embla

    October 9, 2011 - January 1, 2023

    Iceland

  • A young girl sitting in a car seat, smiling and sticking out her tongue.

    Sorin Sargent

    March 29, 2013 - December 25, 2022

    Delaware, USA

  • A young girl with curly hair, glasses, and a pink bow in her hair sitting in a stroller, looking thoughtful with her hands near her mouth.

    Ellissa Summer Dodd

    Aug 16, 2015 - October 17, 2022

    UK

  • A young child in a wheelchair with a feeding tube in his nose, sitting in a high chair with colorful patterned fabrics, wearing a light green long-sleeved shirt with a fox graphic.

    Sergio Gabriel Kuzia Andreasson

    November 8, 2020 - July 8, 2022

    Iceland

  • A young girl lying on colorful pillows, wearing a pink dress with white polka dots and a pink hairbow.

    Courtney Bernadette Limberg

    September 6, 2007 - June 16, 2022

    Kentucky, USA

  • A smiling boy with short hair, wearing a neck brace and a backpack.

    Joshua Jones

    December 20, 2009 - May 17, 2022

    UK

  • Young boy with red hair lying on a hospital bed, resting his head on his arm, smiling softly.

    William Greyson Jones

    June 1, 2019 - April 5, 2022

    Kentucky, USA

  • Close-up of a young child's face, wearing a black and orange cap, looking pensively to the side.

    Kirian Morón

    November 3, 2011 - March 29, 2022

    Sementina, Switzerland

  • Young boy with light brown hair wearing a navy blue knit sweater and a gray scarf sitting outdoors at night.

    Cameron Pate

    December 15, 1997 - February 25, 2022

    UK

  • A young child lying on a sofa with arms raised, smiling and looking up, in a black and white photo.

    Zion Griffiths

    June 5, 2018 - February 24, 2022

    Wales, UK

  • Young girl with dark hair, sitting in a car seat, making a silly face with her tongue out.

    Samuel “Sammy” Isaac Smuk

    March 1, 2016 - July 9, 2021

    Ohio, USA

  • A young boy with short brown hair and fair skin is making a fist, flexing one arm, and looking at the camera. He is wearing a green T-shirt and appears to be inside a room with a blurred background that includes papers or posters on a bulletin board.

    Jared Allan Larson

    April 16, 2004 - January 15, 2021

    USA

  • Young boy with a nasal cannula lying in a hospital bed, smiling and looking to the side.

    Omar Amar

    February 20, 2016 - February 24, 2020

    Spain

  • Close-up of a young child with reddish-brown hair resting their head on a pillow.

    Cillian Shanahan

    December 7, 2017 - November 21, 2019

    Tipperary, Ireland

  • Young boy with cerebral palsy in a wheelchair outdoors, wearing a blue bandana, smiling with mouth open, brick wall in background.

    Mason Palmer McGinnis

    July 18, 2015 - December 31, 2019

    Virginia, USA

  • Close-up of a young girl with light blue eyes, light skin, and light brown hair styled into braids with a pastel-colored bow accessory.

    Faith Isabella May Edward

    November 11, 2006 - November 06, 2019

    Australia

  • Close-up of a lit candle with a glowing flame against a black background.

    Hudson Jarrett

    November 22, 2018 (under 1 month old)

    Australia

  • A smiling toddler with dark hair lying in a car seat, wearing a white shirt and a medical device around the neck.

    Suvir Shah

    September 26, 2018

    New Jersey, USA

  • A young child wearing a multi-colored winter hat that is brown, pink, and gray, with a pink lining, smiling with their tongue slightly sticking out.

    Zoe Raeanne Livingston

    August 22, 2015 - November 19, 2017

    Idaho, USA

  • A smiling woman with glasses, wearing a maroon off-the-shoulder top, sitting indoors at a restaurant with large windows and festive decorations.

    Shannon Bromley

    February 11, 1993 - March 28, 2017

    Canada

  • A young person with curly brown hair and light skin lying in bed with a pillow behind their head, wearing a red T-shirt.

    Ben Zgorski

    August 3, 1991 - October 7, 2016

    Maryland, USA

  • A young boy wearing glasses with a slight smile

    Gary Akima

    January 5, 2012 - February 11, 2016

    Oklahoma, USA

  • A young boy in a wheelchair wearing a school uniform, including a white shirt, maroon tie, and dark vest, with a nasal cannula for oxygen, in a bedroom with a bed and closet in the background.

    David Adema

    September 23, 2013 - January 22, 2016

    Flevoland, Netherlands

  • A young boy with short hair sitting in a wheelchair, wearing a blue shirt and bib, holding a brown stuffed animal, with a slight smile and a bit of drool on his lips.

    Archie Green

    September 23, 2009 - January 9, 2016

    UK

  • Baby lying on bed, wrapped in a green dinosaur costume with white horns and yellow accents.

    Michael Jerome “Mikey” Adamo

    January 21, 2014 - December 25, 2015

    California, USA

  • A young girl with brown hair and blue eyes, wearing a pink shirt with white hearts, resting her head on her hand.

    Béatrice Fortier

    July 13, 2012 - February 12, 2015

    Canada

  • A lit candle with a bright flame against a black background.

    Lennon

    2012 - 1 year old

    UK

Make a Gift in a Child's Honor

To contact us please email: contact@foxg1research.org