News
The Johnson Family - Changing the World Right Here in Port Washington
FOXG1 Research Foundation co-founder and Executive Director shared her story with her hometown local magazine called Port Washington Living. This feature article celebrates the Johnson family and Nicole’s work to find a cure for FOXG1 syndrome, while helping FOXG1 families around the world, including helping the FOXG1 family in the Ukraine to safety.
Help FOXG1 Ukrainian Family Rebuild!
The FOXG1 Research Community has helped get a FOXG1 family safely out of the warn-torn Ukraine! Now, they have to rebuild thier lives. Eva is a 3-ear-old child with the severe rare disease called FOXG1 syndrome. She suffers from seizures and is disabled. They are on thier way to safely, but they lost everything. This is how you can help. Thank you!
UKRAINIAN FOXG1 FAMILY
THE FOXG1 Research Community successfully helped get a FOXG1 family of five safely out of the war-torn Ukraine.
Elena and her husband have been living a complete nightmare with 3-year-old FOXG1 daughter Eva, a 6-month-old baby, and Elena's mother. They have lost everything. Eva needs seizure medication, Sabril and Prisim. They need a home. They have to completely rebuild their lives in Poland.
PLEASE DONATE HERE
Thank you for any help. Every dollar will help them rebuild their lives.
This was only made possible due to the incredible humanitarian operation - Project Dynamo! They do the impossible to save lives!
To Support Project Dynamo please DONATE HERE
For more information about FOXG1 syndrome and The FOXG1 Research Foundation please visit www.FOXG1research.org
The FOXG1 Research Foundation is the global organization driving the science to find precision treatments and ultimately a cure for every child in the world with FOXG1 syndrome. At the same time we are dedicated to advocating for and supporting FOXG1 families through this difficult journey.
To additionally help donate to the science to change the face of this heartbreaking disorder, please go to www.foxg1research.org/donate
We can not do what we do without donations. We are so grateful for you help.
Please follow us on social media: @FOXG1Research #FOXG1Research
and reach out any time [email protected]
From the bottom of our hearts, thank you for helping Elena, Eva and their family!
*Donations are US currency.