THE FOXG1 RESEARCH FOUNDATION SOCIAL :

Please make sure to Follow the FOXG1 Research Foundation on Facebook / Twitter / LinkedIn / Instagram / our News page and our Blog to stay on top of all our news, announcements and real life FOXG1 stories.

WORLDWIDE FACEBOOK GROUPS

We are a global community! There are support groups set up as private, closed groups on Facebook for various regions around the world.

FOXG1 Parents Connect Facebook Group:

This is the Global FOXG1 Parents Connect Private Group for all FOXG1 Parents and Caregivers worldwide where we discuss all FOXG1 Research matters and more.

Facebook group for all FOXG1 parents (non-research foundation related)

Facebook Support group for FOXG1 families in Canada

Facebook Support group for FOXG1 families in French - FOXG1 en français

Facebook Support group for FOXG1 families in the UK

Facebook Support group for FOXG1 families in Poland

Facebook Support group for FOXG1 families in Italy - FOXG1 Italia

Facebook Support group for FOXG1 families in Japanese - FOXG1 患者家族会 -

Facebook page for the German FOXG1 Research Foundation

Facebook Support group for FOXG1 families in Germany - FOXG1 Deutsche

Facebook Support group for Dutch speaking FOXG1 families.

Facebook Support group for FOXG1 families in Portuguese - Português

National Organization of Rare Diseases (NORD) Patient and Families Resources

NORD’s Resource Center provides patients and caregivers with free webinars, fact sheets, infographics and other helpful materials to guide you on your journey with a rare disease.

https://rarediseases.org/for-patients-and-families/information-resources/patient-and-caregiver-resource-center/

Global Genes Rare Toolkits

Global Genes provides an extensive information center for patients and advocates. See Global Genes RARE Toolkits Here.

RESPITE/MEDICAID/ASSISTANCE/BENEFITS:

MEDICAID WAIVERS: Medicaid insurance (if you already have insurance you can use as supplemental to eliminate copays), respite care (skilled and unskilled), etc. LINK HERE

MY GYM FOUNDATION: A non-profit that helps provide equipment for children in need. Visit the website for an application. LINK HERE

MAKE A WISH: Get a wish for your child granted! Must be 2 ½ or older to apply. LINK HERE

FREE LIFETIME NATIONAL PARK PASS: LINK HERE