Our Mission

Four smiling people, a woman and three children, gathered together in a room with wooden paneling background. The woman stands behind a young girl with a prosthetic leg, sitting in a wheelchair, with the other two children, a boy and a girl, on either side. The group appears happy and close.

Who is The FOXG1 Research Foundation?

The FOXG1 Research Foundation (FRF) is the parent-led, global rare disease patient organization driving the research to find successful and precise treatments, and ultimately a cure, for every individual in the world with FOXG1 syndrome, while deeply focusing on patient advocacy, education, and family support.

The FOXG1 Research Foundation Mission:

It is the mission of the FOXG1 Research Foundation to accelerate research to find successful therapeutics for FOXG1 syndrome and related neurological disorders while raising awareness, and supporting and advocating for patients and families worldwide.

A woman holding a sleeping boy outdoors on a grassy area, looking at him affectionately.

The FRF mission includes:

  • Funding cutting-edge science by the world's leading researchers.

  • Finding treatments, and ultimately a cure, for all patients with FOXG1 syndrome in the world

    • all ages

    • all mutation types

    • all geographies

  • Providing equal access to therapeutics for all patients with FOXG1 syndrome worldwide

  • Uncovering the links between FOXG1 and related disorders, including Autism Spectrum Disorder

  • Advocating for FOXG1 patients worldwide

  • Supporting FOXG1 families worldwide

  • Identifying gaps that slow rare disease drug development, and developing solutions

  • Pioneering new methods to accelerate rare disease drug development

  • Raising awareness about FOXG1 syndrome and rare diseases at large