research update

Based on ‘hope and love,’ UB celebrates opening of FOXG1 Research Center

Hope and love aren’t often mentioned in the same breath as scientific research, but they’re exactly what UB’s FOXG1 Research Center (FRC) was founded on. 

“Love for every individual living with FOXG1 syndrome and other neurodevelopmental disorders, as well as their caregivers, and hope that we can find a cure for FOXG1 syndrome and related disorders on the basis of scientific discoveries we are making,” Soo-Kyung Lee, director of the FRC and the parent of a child with FOXG1 syndrome, told a crowd gathered to celebrate the center’s official opening Tuesday. 

November 2020 Research Update : Creyon Bio Takes on FOXG1 for ASOs!

November 2020 FOXG1 Research Foundation Research Update: Two Biotech companies are investing in FOXG1 syndrome for gene therapy and ASO therapy. FOXG1 Research is moving into screening drugs and testing potential therapies with a newly assembled consortium of esteemed scientists.

January Newsletter: Big Things in 2019

January Newsletter: Big Things in 2019

Looking Back. Moving Ahead.

Wow! 2018 was an incredible first year for the FOXG1 Research Foundation! We cannot thank our supporters, partners, and donors enough  for helping to make 2018 an enormously successful year!
2018 Key accomplishments:
•    Raised $1.3 Million for research
•    Assembled a Scientific Advisory Board consisting of 16 of the world's leaders in
     their fields.
•    Funded six esteemed scientists' projects along our Path to a Cure in the USA,
     UK, and Italy
•    Launched the most comprehensive study into FOXG1 to-date,
     with eight mouse models of all known FOXG1 categories.
•    Developed a global FOXG1 Syndrome Patient Registry
•    Developed an iPSC line Patient Biobank