The Ciitizen FOXG1 syndrome Natural History Study not only make managing care easier and gives parents control of thier children’s medical records, but also drives research and will help Biopharma to develop treatments for FOXG1 syndrome. Read how and why.
10 minutes with FOXG1 Super dad Greg Wells \ By M-Team Cares
From the M-team cares blog: With Father’s Day coming up this Sunday, we wanted to know what being a father to children with disabilities really looks and feels like. So we turned to Greg Wells, rock-star dad of two wonderful daughters, Alli and Emma, both with FoxG1. We were touched by his honesty and humility in sharing what fatherhood means in his world. And, after hearing what he had to say, we're pretty sure that Alli and Emma are the luckiest girls in the world to have Greg for a dad!
Meet FOXG1 Mom, Angie Van Wingerden : 10 By MTeam cares
Meet Angie, mom to Eila and twin brothers Jack and Willem. Inspired to contribute her skills toward creating a better life for Eila who was born with a rare genetic condition called FOXG1, Angie volunteers as the CFO and Head of Operations for the FOXG1 Research Foundation.
Below, Angie tells us more about her work with the FOXG1 Foundation, shares a few stories of life with Elia and talks about what it’s like - both the challenges and the rewards - to be a mom to a child with special needs.