The FOXG1 Research Foundation (FRF) is the parent-led global organization driving the research to cure FOXG1 syndrome and related neurological disorders while supporting and advocating for patients and families.
We are running industry-level translational science across genetic therapies and drug screens.
We created the library of FOXG1 animal models, cell lines, and patient natural history data.
We understand the FOXG1 gene and patient symptoms at the deepest levels.
We developed the official FOXG1 Patient Registry and digital Natural History Study.
We are focused on FOXG1 science, FOXG1 patient data, and the FOXG1 patient and clinician community.
We serve the FOXG1 community through resources, clinician guides, conferences, caregiver networking, advocacy, and love.
We are a Chan Zuckerberg Initiative “Rare As One” partner
We are committed to every FOXG1 patient in the world.